On May 19, after admitting to having double vision, her mother raced her to Children's Hospital Pittsburgh, PA. After vigorous tests, five days later an MRI revealed a Diffuse Intrinsic Pontine Glioma. Maiyanna was diagnosed with DIPG, a rare inoperable, dangerous and extremely aggressive cancerous tumor in the brain stem that statistically affects less than 200 children and their families in the United States per year. It is a terminal diagnosis, 0% chance of survival and less than 10% of children diagnosed survive more than a year. Maiyanna and her family were sent home with instructions to simply enjoy the days and time left with her.
Maiyanna received the typical treatment including 6 weeks of radiation therapy and steroids. Maiy's Miracle Foundation was developed to ensure Maiyanna had the best possible quality of life. A community of family and friends worldwide banned together to support Maiy's Miracle, enabling Maiyanna to change her diet to one of organic cancer fighting foods and supplements as well as two rounds of alternative treatment. Maiyanna lived the life a princess deserved. She traveled throughout the country to Disney World, Disney Land and even got her passport! She crossed the borders into beautiful Tijuana, Mexico and took in every opportunity to make her time left a very happy one.
Maiyanna's tumor was donated to the Monje Lab, Stanford University. Maiy's Miracle has developed a strong relationship with Michelle Monje- Disseroth, one of the world’s leading DIPG researchers in efforts to find a cure for DIPG.